Slave to the Rhythm (The Rhythm #1)

That damn wheelchair. It too often defined me.

I took a deep breath. Keeping calm would reassure him, or at least strengthen my argument.

I hated talking about my health. It was all so boring.

“I’m not a child. I can manage perfectly well.”

Collin dismissed my words with a wave of his hand.

“How? How will you manage getting your wheelchair to the airport? How will you manage your luggage? Have you thought about any of this?”

I stared at him, insulted that he thought so little of me, assuming I couldn’t organize anything without him. Collin shook his head.

“I’m just thinking of you,” he said in a milder tone.

“Stop trying to control me and let me get on with my life,” I said quietly.

Collin’s knuckles turned white, gripping the coffee cup as if it was a life-preserver.

“Is that what you think? That I’m trying to control you?”

I sighed. “Sometimes, yes. I know you don’t mean to be like that . . . but I’m going to Vegas.”

“Fine,” he snapped, slamming the cup onto the table so that coffee slopped over his hand. “You don’t want me ‘controlling’ you?”

He made air quotes with his fingers.

“You know what? No problem. I’m done, Laney. I’m so done. All I’ve ever tried to do is help you and I get shot down every time.”

He stood up, his bulky frame towering over me.

“I’m done trying to look after you.”

Then he scooped up his jacket and stormed out of the room.

I heard the door to my apartment slam and the silence washed over me.

“I don’t want you to look after me,” I said to the empty room.

Lame Laney—that’s what they called me at school. I wanted a boyfriend, not a babysitter.

Collin was right in one way. There’s nothing simple about traveling with a wheelchair. I had to be organized, planning ahead for every eventuality. How many other people pack a puncture repair kit when they travel? Other than cyclists, obviously.

I had to pay for my general practitioner to issue a ‘fit to travel’ letter because I was having to change my travel plans. I had to hire a cab that could accommodate my chair, one with a ramp or a pneumatic lift. I needed to organize assistance at the airport—and then hope that it was in the right place at the right time. I could have asked my friends or family to help me, but that wasn’t the point. I was 29 years old, an independent woman. I didn’t want to be reliant on others if I could avoid.

But it helped to choose an airline that would be sympathetic—laws and legislation were often inadequate, no matter what anyone tells you. Goodwill means as much, if not more.

I had to notify the airline service team about the nature of my disability and the kind of wheelchair I used. Hand-propelled ones were simpler than electric chairs, where batteries caused the carrier a headache. Each part of the wheelchair had to be marked with my name in case anything went missing, although I hoped to take the cushion onto the plane with me. And at least I could request a gate check whereby my wheelchair could be directly loaded to the plane’s fuselage.

I spent two hours changing my travel arrangements, wincing at the cost even though I had insurance. And I’d learned by experience not to rely on emails; talking to a human being usually produced better results, although not always.

“Ma’am, are you able to walk a short distance?”

The airline’s employee was polite, going through her checklist of questions.

“Not today,” I sighed.

“That’s fine, ma’am. We’ll pre-board you. If you could be at the airport three hours before your flight.”

I hoped that the airline would upgrade me. Sometimes they did. But if they didn’t, I’d requested a window seat. It might seem easier to have an aisle seat . . . right up to the moment the person by the window needs to get up to visit the bathroom and has to climb over you.

I’d also learned that a window seat gives you something extra to brace against during the landing.

Next, I contacted the hotel to check if a disabled room was available.

“On the lowest floor possible, please.”

Elevators are shut down in the event of a fire.

And because I was careful, prepared, I asked the hotel about the width of the doors on their disabled rooms, including the bathroom. There was no point checking in and finding your chair didn’t fit through the door.

So far, so good. But although they had a roll-in shower, they weren’t sure if a shower wheelchair was available. I politely requested that they enquire, then packed several garbage bags in my suitcase. If necessary, I could wrap my seat cushion and chair back in plastic and make do. It wasn’t ideal: garbage bags are slippery to sit on. You might even call it an accident waiting to happen.

And finally, I packed a spare pair of pushing gloves; it’s surprising how quickly they wear out from all the extra work.